In our first episode, Richard meets with Dr. Maryam Lustberg, Chief of Breast Medical Oncology at Yale Cancer Centre, and Dr. Corina van den Hurk of the Netherlands Comprehensive Cancer organisation. Maryam and Corina are both paving the way in side effect management for chemotherapy patients across the globe. We discuss their current research initiatives, their own personal connections with scalp cooling, and the need for better symptom management care, to improve patient’s quality of life as well as their treatment.
6:59 – The impact of chemotherapy-induced hair loss on quality of life and self-image amongst patients, and why scalp cooling should always come down to patient choice
12:32 – Current research on persistent chemotherapy-induced alopecia as a result of taxane-based regimens
18:51 – Challenging the status quo to ‘take the side effects as we are managing your cancer diagnosis’, and the clinician’s responsibility to direct dialogue around side-effect management
23:59 – Importance of real world data and patient reported outcomes when it comes to effectively managing symptoms
27:21 – The work of MASCC on disparities within global cancer supportive care
30:18 – Corina’s work with the MASCC Oncodermatology Study Group on general supportive care, and the management of skin toxicities
33:06 – Discussion on chemotherapy-induced peripheral neuropathy. The impact on QoL, current intervention strategies, and symptom misinformation which may affect patient reported outcomes
Dr Corina van den Hurk, Clinical Researcher at the Netherlands Comprehensive Cancer Organisation (IKNL): IKNL (Integraal Kankercentrum Nederland)
Dr Maryam Lustberg, MD, MPH, Chief of Breast Medical Oncology at Yale Cancer Centre and Director of The Breast Center at Smilow Cancer Hospital: Maryam Lustberg, MD, MPH < Yale School of Medicine
Want to know how you can get involved in the International Scalp Cooling Registry? Email C.vandenHurk@iknl.nl for more information.
Additional Resources:
Permanent Chemotherapy-Induced Alopecia in Patients with Breast Cancer: A 3-Year Prospective Cohort Study. (2019, Kang et al.) Permanent Chemotherapy-Induced Alopecia in Patients with Breast Cancer: A 3-Year Prospective Cohort Study – PubMed (nih.gov)
Scalp cooling for hair preservation and associated characteristics in 1411 chemotherapy patients – Results of the Dutch Scalp Cooling Registry. (2012, van den Hurk et al.) Link: Scalp cooling for hair preservation and associated characteristics in 1411 chemotherapy patients – results of the Dutch Scalp Cooling Registry – PubMed (nih.gov)
Prospective study of hair recovery after (neo)adjuvant chemotherapy with scalp cooling in Japanese breast cancer patients. (2021, Ohsumi et al.) Link: Prospective study of hair recovery after (neo)adjuvant chemotherapy with scalp cooling in Japanese breast cancer patients – PubMed (nih.gov)
In our first episode, Richard meets with Dr. Maryam Lustberg, Chief of Breast Medical Oncology at Yale Cancer Centre, and Dr. Corina van den Hurk of the Netherlands Comprehensive Cancer organisation. Maryam and Corina are both paving the way in side effect management for chemotherapy patients across the globe. We discuss their current research initiatives, their own personal connections with scalp cooling, and the need for better symptom management care, to improve patient’s quality of life as well as their treatment.
In our first episode, Richard meets with Dr. Maryam Lustberg, Chief of Breast Medical Oncology at Yale Cancer Centre, and Dr. Corina van den Hurk of the Netherlands Comprehensive Cancer organisation. Maryam and Corina are both paving the way in side effect management for chemotherapy patients across the globe. We discuss their current research initiatives, their own personal connections with scalp cooling, and the need for better symptom management care, to improve patient’s quality of life as well as their treatment.
6:59 – The impact of chemotherapy-induced hair loss on quality of life and self-image amongst patients, and why scalp cooling should always come down to patient choice
12:32 – Current research on persistent chemotherapy-induced alopecia as a result of taxane-based regimens
18:51 – Challenging the status quo to ‘take the side effects as we are managing your cancer diagnosis’, and the clinician’s responsibility to direct dialogue around side-effect management
23:59 – Importance of real world data and patient reported outcomes when it comes to effectively managing symptoms
27:21 – The work of MASCC on disparities within global cancer supportive care
30:18 – Corina’s work with the MASCC Oncodermatology Study Group on general supportive care, and the management of skin toxicities
33:06 – Discussion on chemotherapy-induced peripheral neuropathy. The impact on QoL, current intervention strategies, and symptom misinformation which may affect patient reported outcomes
Dr Corina van den Hurk, Clinical Researcher at the Netherlands Comprehensive Cancer Organisation (IKNL): IKNL (Integraal Kankercentrum Nederland)
Dr Maryam Lustberg, MD, MPH, Chief of Breast Medical Oncology at Yale Cancer Centre and Director of The Breast Center at Smilow Cancer Hospital: Maryam Lustberg, MD, MPH < Yale School of Medicine
Want to know how you can get involved in the International Scalp Cooling Registry? Email C.vandenHurk@iknl.nl for more information.
Additional Resources:
Permanent Chemotherapy-Induced Alopecia in Patients with Breast Cancer: A 3-Year Prospective Cohort Study. (2019, Kang et al.) Permanent Chemotherapy-Induced Alopecia in Patients with Breast Cancer: A 3-Year Prospective Cohort Study – PubMed (nih.gov)
Scalp cooling for hair preservation and associated characteristics in 1411 chemotherapy patients – Results of the Dutch Scalp Cooling Registry. (2012, van den Hurk et al.) Link: Scalp cooling for hair preservation and associated characteristics in 1411 chemotherapy patients – results of the Dutch Scalp Cooling Registry – PubMed (nih.gov)
Prospective study of hair recovery after (neo)adjuvant chemotherapy with scalp cooling in Japanese breast cancer patients. (2021, Ohsumi et al.) Link: Prospective study of hair recovery after (neo)adjuvant chemotherapy with scalp cooling in Japanese breast cancer patients – PubMed (nih.gov)
