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Patient Journeys

The Paxman Scalp Cooling System is used all over the world to help prevent hair loss for patients undergoing chemotherapy treatment. We are always keen to hear the stories of the people we meet and speak to every day, offering our support and listening to the ways we can continually improve.

There have been many successful outcomes for people using the Paxman system – see what patients and healthcare professionals have to say about their experience of scalp cooling below.

Brenda

After waiting on pins and needles for several days, the biopsy results did not return in my favor. I was simply stunned at what Dr. Ann was telling me. In a nutshell, that is how my journey started. I realize my journey is different than the other people’s.

Standing in my dining room the first Friday of November, I had no idea what my next step would or should be. Thankfully, Dr. Ann had already gathered information on the surgeon and the oncologist that I would soon trust with my life. On my birthday in December, I had my surgery. The...

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Sharen Healey

My name is Sharen and I want to talk about my experience using the Paxman cold cap. I was diagnosed with stage 1 Her2 positive breast cancer in February 2018 after my annual mammogram. Everything moved pretty fast after that. I had a lumpectomy on February 15th and after healing for a few weeks I needed to start chemo therapy and Herceptin. As any woman would be, I was concerned about hair loss. I knew I was sick, but I didn’t want to look sick. Not only because of returning back to work, but because I am a vocalist and...

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Sarah Meriweather

On the 5th November, I got engaged to the greatest man on earth - well at least to me. It was the happiest time of my life, but little did I know that a month later my happiness would turn into fear and my world would be turned upside down. Every year my fiancé Curt and I, both get the flu shot. This year, something was different with the shot. My lymph nodes in my neck swelled up and I had a lot of pressure on my neck. I decided to go to the doctor because it wasn’t getting any...

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Valerie Murphy

In February 2017 I was diagnosed with stage 2 breast cancer in my right breast. My treatment included a lumpectomy, four rounds of chemotherapy and 6 weeks of radiation which took place at UC San Diego Health - Cancer Services, Encinitas from July to September 2017. I had originally heard about cooling caps in my support group however, the woman who told me about it had used a system developed by a different company. Sadly, she had spent $6,000 and still lost most of their hair. At this point I had decided against the treatment has $6k was completely...

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Kerry Muscat

Hi, my name’s Kerry, here’s my story. My diagnosis came 3 days before my twin daughters 18th birthday in 2016. Not the present I had been hoping to give them I must say. I had noticed a weird lump under my arm so had it checked out thinking it was going to be some kind of cyst type thing. How wrong I was. I was 45 at the time of diagnosis and the biopsy had come back as “highly suspicious for metastatic breast cancer”. I had a long month of appointments and scans chasing around to find the breast lump...

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Amber Pena

My name is Amber. I felt a lump on my breast last summer and went to my gynaecologist who referred me for a diagnostic mammogram and ultrasound. It was during the mammogram that they found a suspicious area and recommended biopsies. A few days later I received my initial diagnosis of stage 1 breast cancer. Shortly after, I had my initial surgery (lumpectomy with lymph node dissection), but I didn’t receive clear margins and it showed 1 out of 5 of my lymph nodes were positive for cancer. My prognosis was then bumped into stage 2. After my second...

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Lisa Wells

My name is Lisa Wells. I’m 32 and a mother to two beautiful girls. On the 15th of December 2017, when my baby was just 5 weeks old I was diagnosed with terminal bowel cancer that had spread to my liver. My chemotherapy began the week after diagnosis and I am currently being treated at the Royal United Hospital in Bath. When you begin your chemotherapy journey, the whole process is explained to you and it was then that I was told that the chemotherapy treatment I was to receive would cause me to lose my hair. The nurses...

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Rachel Kenneally

On the 26th March 2018 primary school teacher Rachel Kenneally sadly passed away in her home surrounded by loving family and friends. Rachel was determined to raise awareness of scalp cooling but died before she had chance to. Now her family are sharing Rachel’s story to fulfil her last wish to help others. Rachel was an inspiration and natural ambassador, showing bravery and selflessness following her diagnosis and illness. On behalf of everyone at Paxman we wanted to pass on our heartfelt and sincere condolences to all Rachel’s family and thank them for bravely sharing Rachel’s story.

“I’m Rachel and...

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When anyone finds out I have had chemo they say to me, ‘but you’ve kept your hair’ then that’s my cue to explain the scalp cooler!

I was a 43 year old busy mom of two boys and three step children. I was doing high intensity interval training four times a week and was fairly fit. I felt a thickening in my left breast which I thought was muscle from lifting weights. After a few weeks I decided to get it checked at the doctors. The GP sent me to the rapid access clinic at Russell’s Hall Hospital where I had a mammogram and ultrasound, followed by core biopsies of my breast and lymph nodes. On the 25th April 2017 I was given the results I had been...

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Elizabeth Paddock

Being diagnosed with ovarian cancer at 26, I’ve learnt that cancer can affect anyone, at any time, at any age. In February 2017, fourteen days after routine surgery to remove an ovarian cyst I heard the words ‘You have cancer’. I’d wandered into the appointment clutching a coffee thinking my consultant wanted to check my surgery scars, and instead I heard the words no one should ever have to hear. I had been going to my GP for three years with the symptoms and had been dismissed on each appointment, and now I was being told I needed additional surgery...

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Helen Allsop, Mansfield

I’m Helen and I have been married for 24 years. I am a mum of four - 3 boys and a girl. I work for Weight Watchers as a coach and I absolutely love my job.

It all started when I went for a routine mammogram on 16 January 2017. My first had been 3 years ago when I was 49 but since then I hadn’t felt anything, I hadn’t had any changes so to me it was just a routine check-up. I nearly didn’t go for the appointment as it fell between two family birthdays and I considered myself...

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Debbie Charles

I was referred to an oncologist and my chemotherapy treatment began in September at Northampton General Hospital.

To be truthful, I was mortified at the thought of losing my hair. I knew I could cope with most things, however, losing my hair (which was my best feature) was something else. Years ago, I can remember watching a TV movie following the life of Ann Jillian in which she was diagnosed with breast cancer and used a cold cap during her chemotherapy. For whatever reason, I had remembered this and set about researching ‘cold cap’ on the internet.

Before the start date of...

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Christine Lydon,

“Early photos suggested my hair would indeed be my crowning glory. Blessed with golden Shirley Temple style curls and the sassy personality to match, it seemed I was assured an easy ride in the hair stakes. Sadly by the time I hit my teens, the curls had drooped and the shade was closer to a mousey brown than California blond. It was frustrating. I tried to encourage a bit of blondness with chamomile and lemon juice concoctions, to little effect, followed by various wash in/wash out colours. Once at university I embarked on an expensive highlight habit as I flirted with...

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Nelia Soares, Texas, USA

In November 2015, I got married in beautiful Maui and returned to find out that the preventive mammogram I had before I left was abnormal. I had a repeat mammogram that same month and was devastated to learn I had breast cancer. I was told that, for the next year, I would undergo chemotherapy, three surgeries, radiation and IV infusions every 3 weeks, not to mention all the frequent follow ups. I remained in a fog throughout the holiday season in 2015. One of my biggest fears was losing my hair during chemotherapy. People would tell me that my hair would...

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Felicity Gain

Hello, my name is Felicity Gain. I am 39 and have just been diagnosed with breast cancer. Hair loss is not a new thing to me to be honest as I have already lost it twice due to illness; first with leukaemia and then when I had a bone marrow transplant. I am determined not to lose it again to breast cancer!

When I had leukaemia 15 years ago, I wished that I could have used a cold cap. Unfortunately, the treatment didn’t allow for this as the chemotherapy had to reach my whole body. This meant I lost my...

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Andrea Moffat

I’d just landed back in the UK having been out in Oman for a week delivering a training course for my professional institute to find a letter waiting for me. The letter was calling me back the very next day - a routine mammogram had revealed abnormalities.

I knew when the doctor I saw the next day stopped what she was doing, looked at me squarely and said there was something nasty evident on the ultra-sound that something was wrong. They just don’t say that without a biopsy unless they are really certain. It might sound...

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