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Patient Journeys

The Paxman Scalp Cooling System is used all over the world to help prevent hair loss for patients undergoing chemotherapy treatment. We are always keen to hear the stories of the people we meet and speak to every day, offering our support and listening to the ways we can continually improve.

There have been many successful outcomes for people using the Paxman system – see what patients and healthcare professionals have to say about their experience of scalp cooling below.

Mandee Castle

I was diagnosed on 19th November 2012 at the age of 45. After noticing a dip in my breast I assumed it was probably due to my age or breastfeeding my son, so I wasn’t too concerned. After mentioning it to my doctor and him examining me, he thought it was a good idea to go for a mammogram.

I found out I had breast cancer, lobular carcinoma. They eventually found five very small tumours. The largest was 13mm and the smallest only 5mm. On December 19th 2012 I had a mastectomy and on 19th February 2013 I started FEC75 chemotherapy...

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Ruth

Ruth’s Story (in the voice of her husband).

My wife was diagnosed with breast cancer in March of this year and this forum has really been a Godsend, so we wanted to give something back by sharing our experience with the Paxman cold cap clinical trial. Overall, Ruth did lose about 60% of her hair, but it has definitely slowed down in recent days. She was able to “fake it” for a long time, creatively styling her hair to cover any thinning areas, but most importantly, she has never had to wear a wig throughout all of this.

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Sharon Bolton

​In July 2010, I was diagnosed with breast cancer. It was confirmed as invasive ductal breast plus DCIS at grade II with the tumour being 46mm in size. I was 44 years old and very scared.

I won’t ever forget having to tell my children (aged 21 and 17), family and friends this awful news. It felt very surreal, but it also felt great to tell them it was treatable and I couldn’t wait for the treatment to begin. There was so much to take on board but it all sounded positive and that’s how I remained throughout the whole cancer...

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Rachel Clark

After the whirlwind of diagnosis, we got down to the nitty-gritty of the side effects of my chemotherapy regime of 4 x Docetaxel and 4 x EC. The advice on the hair front was categorical, “You will lose all of it”. I was duly dispatched to ‘patient appliances’ to select the new me. I was also told however, that I might wish to try scalp cooling with the observation, “It works for some and not for others”.

So, having ignored the patient sat in the day unit reception intent on scaring me off it, I donned my cap for the...

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Sally Maryon

​In January 2015 I was diagnosed with ovarian cancer. This is still difficult to type and in fact it’s like I’m talking about someone else. Telling my daughters (aged 21 and 16) was one of the hardest things I have ever had to do. In my explanation, I told them I had been offered treatment to recover and we would take it one step at a time. That was the start of my positive road that I intended to go down.

At my first appointment with my oncologist, she told me about Paxman cold caps and how they can prevent hair...

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Debbie Wolfe

When I discovered I had breast cancer in June of last year, my biggest fear was that I would lose my hair. I know that sounds vain but it was the one thing that makes your illness so apparent to everyone and I wanted my life, and that of my husband and children, to go on as normal.

We researched cold capping on the internet and found the Paxman Scalp Cooling System. I contacted yourselves and found you to be extremely helpful and understanding. On my first chemo session, Paxman came to the Bristol Oncology Centre to explain the simple procedure...

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Cheryl Venturini, Canada, Trail B.C.

My experience with the Paxman Scalp Cooling System. I was diagnosed in June of 2014 with recurrent breast cancer. I underwent a bilateral mastectomy and four rounds of chemotherapy. I was able to keep most of my hair except for some thinning at the top, thanks to using the cold cap. Not losing my hair made going through chemo easier and more positive. Nine years ago, I went through 4 rounds of chemotherapy for breast cancer and before my second treatment I had lost all my hair and ended up wearing a wig. I’m so happy this didn’t happen this...

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Hair cooling was not a complete success for me, but the fact that it was available was hugely important psychologically. Chemotherapy is gruelling, and the psycho-social effects of hair loss can be devastating, so the fact that there was hope of a solution made a massive difference. I held onto my hair almost to the end, and was only completely bald for about 6 weeks, as opposed to 6 months. I’m grateful to Paxman for being committed to the cause of hair retention for cancer patients.

Anonymous
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Based on existing documentation and my own, as well as experience from a number of renowned cancer centres, I consider the Paxman Scalp Cooling System a safe, effective and convenient way to prevent chemotherapy-induced alopecia, in the curative, as well as in the palliative setting.

Ole Kristian D Anderson, MD Oncology Consultant, SiVOnkologi, Tonsberg Norway
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I recently had to undergo chemotherapy at Dewsbury District Hospital. I was devastated to hear I would lose all my hair as a result, but could try the Paxman Scalp Cooling System manufactured by your company to minimise the loss. I am pleased to say that it worked, I lost a slight amount of hair, but no one noticed. I would like to thank all concerned in the inventing and producing of this machine. It made such a difference to my recovery. I tell everyone how amazing this is, they can’t believe it.

Thank you from the bottom of my heart,...

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Sue Lower

Last December, I successfully had a lump removed from my breast. Although I was given the all clear, I still had to undergo six chemo sessions. I was totally devastated when I was told I would definitely lose my hair. I was given literature about the Paxman Scalp Cooling System and decided to try it. It was marvellous. I kept all of my hair and although the hair felt finer to me, none of my family or friends could see any difference. All of the nurses at the hospital were amazed and said it was the best result they had...

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Gill Ridden

I received chemotherapy at North Tees Hospital, Stockton and have now completed my chemotherapy regime. I had 6 sessions of EC chemo at 3 weekly intervals for treatment of stage 2 bi-lateral breast cancer.

I have been using your cooling cap system since my first treatment and, although a little sceptical at first, I am absolutely delighted with the results. It has now been three weeks since the last treatment and having my hair means, for me, that I can move on from the illness quicker.

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Heidi Hanestad and Mali Sölverud Faerden, Oncology nurses at Kreftsenter at Baerum Sykehus, Norway

We are very happy to find Paxman Scalp Cooler being even better than PSC-2.

  • It is easy to use with the new touch display
  • It is fast to cool to operating temperature
  • It is quiet in operation
  • Patients find the silicon cap much softer and more comfortable
Heidi Hanestad and Mali Sölverud Faerden, Oncology nurses at Kreftsenter at Baerum Sykehus, Norway
Michelle Wardley

For me, hair loss is the only sign of being a breast cancer patient. As I’d had my cancer lump removed with breast conserving surgery, my chemo was purely preventative and I was no longer a cancer sufferer.

At the start of my treatment plan, I didn’t want the chemo – no one does – but if I was going to have it, it would be on my terms. You have limited choices about your surgery, chemo, radiotherapy etc. but you can try to control the visible signs. I didn’t want to lose my hair and show the world I...

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I have just finished my chemotherapy. I was offered the cold cap and I was glad I took up the option. I had my hair cut short and over the six treatments my hair has thinned but very gradually. I do not need to wear a scarf or a wig. That had been a bonus as we have had such a very warm summer.

During the treatment, I wore a headband to protect my ears. It is very cold but stick with it because after about ten minutes you get accustomed to it. My chemotherapy nurse wrapped me up in blanket...

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KEEPING THE SECRET! I was diagnosed with breast cancer in November of 2012 at the age of 41. In addition to the obvious horror about what I was about to face, my main concern was for my children; they were a very young 8 and 10 at the time. I agree with all the other posts about the details regarding the cooling but would like to add the following. Despite my original diagnosis, a mastectomy, chemotherapy and radiotherapy - my children have no idea. My husband and I took the decision early on that they were too young to cope with...

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